Monthly Archives: May 2014

Whistleblower – The World of Law dosn’t Understand PIDA

Tell to tell it my way!  As I truddle towards my Appeal I wonder if there is any logic let alone justine in the British Law?

I blew the whistle to the Civil Aviation as per the PIDA and this was pass to the Aviation Authority for investigation.

Evidence confirmed the actions taken, which in turn led to the disclosure that some contracts placed with my employer were contrary to Regulations in the first place; and that other contacts had been put in place fix actions of the first.

The actions and ‘misunderstanding’ of the Employment Tribunal beggars belief and stretches credibility to breaking point.  Level of trust zero.  “Reasonable belief” for PIDA, – forget it!

I have had to represent myself as the Union would only provide three months legal support (they have no policy on Whistleblowing);

I am struggling with Legal Aid as even they do not understand what PIDA is – and if I should qualify for Legal Aid to support me in lodging an Appeal.  The Answer being NO.

Employment Tribunal now only attract Legal Aid in cases of ‘discrimination’ under the ‘discrimination act’ i.e. sex, race, age, disability etc.  This effectively makes PIDA weaker than ever.  The Employment Tribunal is the only route or process to follow; and there is no legal aid.  Why would a whistle-blower start a case in the ET?  Because of discrimination’ from employer due to disclosure; or Constructive Dismissal (which should be automatic – case history shows that this is no longer the c

If you’ve lost your job due to a disclosure or can no longer work due to disclosure what can you now do?  I’m bankrupt now, by the time I get to Appeal I’ll be homeless.

Legal experience (there is a similar story in the news today about lack of barristers to support fraud cases due to cuts in Legal Aid)  In the field of Aviation and Airworthiness the solicitors who have experience can be counted on one hand.  Most already work for my previous employer or the MoD, leaving Haddon-Cave who is no longer in practise – not that I could afford him.

Gov. pushing for more cases to be settled commercially or via ACAS to reduce the number going to ET.  Employers are more likely to want to settle Whistleblowing claims in this way – reducing the amount of case history and statute the ET can reffer to; thus watering down the law even further.  Shouldn’t PIDA be FORCED to go through the Full Tribunal.  “Public Interest” is supposed to mean something?

 

 


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Trade aggrement with Afghanistan and Astrazeneca can make the drugs the NHS needs?

Poppy control in Afghanistan a failure? GOOD!

MPs slam UK record on controlling Afghan opium poppy harvest

A cross-party report says attempts to manage levels of poppy cultivation in Afghanistan have been a failure, well good I say.

Afghan farmers know nothing else growing poppies is what they do; unless they are shooting at people who try to destroy or steal their crop.

Attempts by successive governments to control the Afghan opium poppy harvest  (Which may well be the source of some of heroin that comes to Britain) has been a failure according to a new report.

However the UK and NHS is desperate cut funding and cost of medicine.  It is also desperate to keep its own Pharmaceutical industry (like Astrzeneca)!  Most of the pain killers used are expensive and derived from Opiates or  Opioid alkaloids found as natural products in the opium poppy plant, for making Morphine agmoust many others.

Why should we buy drugs made from Californian poppies from Pfizer?  We could have a trade agreements with Afghanistan and Astrazeneca can make the drugs the NHS needs!  This also provides a steady safe income to the Afghan farmers; the only income they have.  UK and other NATO countries need not worry about illegal import of Heroin if the Afghan’s turn to a steady regular income instead of the illegal Heroin which has led to so much conflict!

Trade in Opium is legal when used to harvest the opium for the Pharmaceutical industry.  In the UK we grow it Oxfordshire!  It is utter hypocracy to destory what we need; and punish those who farm it!  Sure it might be an advantage to the US to control the world’s suppy of Morphine and control the world’s Pharmaceutical industry!  But why should we be that stupid?

Please Share.

Other ref:

US State Blocking of Legal Afghan Opium Export

Feasibility Study on Opium Licensing in Afghanistan (PDF)

 

 

 


Within in minutes of my last post and commenting on the dissary the term ‘CFS’ leaves is in – I recived a link to the story below:

The Nightingale report told the House of Lord and Commons to stop using the term CFS.

“I have friends diagnosed with ‘ME/CFS’; who had been under long term stress and hence were fatigued… They never had any of the odd Neuroligical symptoms I have; nor ever saw a Neurologist. They are now better having rested! Wow a cure!? Not!

The water is muddied. Fatigue is not Encephalitis.

The NHS and medical community will acknowledge Encephalitis only when the infection is still raging – no consideration is given; no data is collected for scars and damage left by unobserved Encephalitis. M.E. has the same set of symptoms as surviours of chronic infection where Encephalitis was ‘by luck’ observed and treated at the time of infection that being – “characterized by several normal years (6–15 on average) following original infection and Encephalitis, and then gradual, progressive psychoneurological deterioration, consisting of personality change, seizures, myoclonus, ataxia, photosensitivity, ocular abnormalities, spasticity, general malaise, fatigue and coma.” Sounds familar to me?! ”  (end comments)

The case below there is a clear link made between the infection David suffered and his malise and decline.  It beggars belief that the diagnosis was ME/CFS instead of Encephalitis or Acute disseminated encephalomyelitis.  If his symptoms were properly diagnosed he would have been scanned and the Brain damage spotted.

I am disgusted at the treatment David got in Germany.  Sadly the NHS in the UK is no different!

 

David’s Story:

David’s mother, who wished to remain anonymous, sent me her son’s story a few days ago after I asked for photos of people who had died of ME/CFS. She hopes that when people learn of David’s horrendous experience some progress will be made toward helping patients with ME/CFS, and that David’s suffering will not have been in vain.

It is not easy to tell David’s story.

In February of 2011, at the age of 15 ½, David had an acute infection with fever, along with inflamed, suppurating tonsils. He took antibiotics, the fever went down, and everything seemed to go back to normal. Shortly afterwards he developed back pain. He had been working very hard in his garden, carrying heavy stones. This seemed the reason for his back pain.

The following months he seemed to be functioning, but afterwards we realized that he was suffering quietly. None of us knew about his sleep disturbance, because he never complained. He only told me about the pain, so he was seen by orthopedic doctors. But we didn’t understand why no treatment seemed to really help. At the end of summer vacation 2011, he told me one evening that he was not sure if he could manage school. I thought these were strange words from our son, who was very diligent regarding school.

By the beginning of October he was no longer able to attend school. He could barely move and lay in bed like a statue.

After a few days our family doctor referred him to a children’s hospital. They did many tests for orthopedic and rheumatic illnesses – there was no result. That was where David heard for the first time: ‘It is no wonder you feel so bad, if you don’t move at all…’ The hospital’s psychologists said it could be ‘all in his head’…

After 10 days of no test results and no progress, we took David back home.

At home, he got physiotherapy for his back, but now he seemed to develop strange sensitivities and odd explanations for his bones and joints hurting – a fact that augmented the impression that it was ‘all in his head’.

Our family practitioner was very concerned about the fact that he was at home, and ‘nothing was happening’ while David was getting more and more ill. In October he could walk the 2 km to the physiotherapy office, but by December this was no longer possible, and nobody could understand why. He lost weight although he ate as much as he could – and that was really a lot! – but he hardly moved.

To make the following months short: There were no positive results from any test, and every absent finding made the impression stronger that there was something very wrong in his head. Only we, his parents, said, “We’ve known him for 16 years now, and there is something not right with the explanation that his symptoms are only signs of major depression or somatoform disorder.”

The only measureable outcome was a very high NSE [serum neuron-specific enolase] in December, but after an intense search for neuroblastoma – with no confirmation – the value was declared as a laboratory mistake.

We lost confidence in our family practitioner, but had no alternative. She urged us to go to the psychiatric hospital. We believe she did this to free her of the responsibility she felt for the situation. She was not willing to order the tests we requested, such as testing epinephrine levels. Her reaction was “Yes, we could do this at some point, but NOW it is the time to ask a psychiatrist…”  That told us that she had already made a psychiatric diagnosis. We felt that there was something wrong with this, but we had no clue what the heck our son was suffering from. We kept searching for help, and I found a way to test his epinephrine levels as he was at home (not so easy if you have no doctor), but the results took weeks.

During that time we took David to a psychiatric hospital with very heavy hearts, but our question there was, “We don’t know what he is suffering from. Can you help him?”

After one week, we got the answer: “He has no major depression, he also has no incipient psychosis (as one doctor assumed weeks before). We don’t know what he has. But NOW we have to get him moving, because activity is the most urgent thing he needs.”

While he was in the psychiatric hospital, David got worse and worse. He got no help or attention for his physical needs. His oversensitivity to sound was very acute at this time but they made no compensation for this. He was traumatized.

In the second week of his time there, we got the results of the epinephrine test he had taken weeks before. All his hormones were very, very low, nearly alarmingly low. We showed the results to the doctors and asked for follow-up, or for more testing. The answer was that the tests were designed for detecting an overproduction of these hormones, so these results are meaningless. A few days later, David was taken to the locked ward.

With the knowledge we have now, and from our experiences over the following months, we now realize it was a miracle that we managed to get him out of the locked ward. Our reason was that we wanted to try to figure out what was happening to David with an endocrinologist. (But I will never understand why it was impossible to ask the endocrinologist at the hospital for advice?! David was in a university hospital, and all the specialists were right there!)

After 2 1/2 weeks in psychiatry David could no longer walk more than a few steps, so we had to lay him down in our car, because he could not sit for the 1 1/2 hour trip. He never recovered to the level he had been before being admitted to the psychiatric ward.

I had made an appointment with an internist who was a specialist in epinephrine problems a few days after David came home with us. It was he who diagnosed David with ME/CFS. At first the diagnosis was only a hunch, but time proved him right. Nine months after David was forced to leave school we finally had a diagnosis –  of something I never had heard of before. 

The following months David got slowly, but steadily worse. Mainly his oversensitivity grew. From December 12 until February 13 he was in a poor, but stable condition, so we gained hope for things getting better, we thought we reached the bottom of the valley.

Then, in the middle of February, he crashed in a way we could not imagine before. Each week, almost every day a new low point was reached.

One morning in the last week of March, my husband heard a strange noise and went to see what was going on. He found David on the floor, unable to move, in terrible pain. But he was conscious, recognized his father, and was able to speak.

David was brought to the ER, where they found a large brain hemorrhage. They couldn’t stop the bleeding, and after some hours, a second brain hemorrhage was found. They transferred him to a hospital with a neurosurgery unit.

He died 28 hours later without regaining consciousness. His father and I were with him until the end. His brothers and sister came this last day and said goodbye to him.

None of the medical professionals we met in his last two days ever heard of an illness called ME/CFS or was familiar with the symptoms David had.

Three weeks after David’s death, I went to a meeting of ME/CFS patients and care givers. This meeting was my first contact to patient groups – before that we didn’t have the time, the strength or the knowledge about what was possible.
 
David’s parents wrote the following letter to the health minister of Rheinland-Pfalz
 
Dear Health Minister,
 
Three weeks ago we lost our 17- year old son David. He died after two days at the intensive care unit as a result of an unstoppable brain hemorrhage.
 
Before his illness he was a normal teenager with no problems at school. He played cello for 10 years, planted his garden with devotion, cared for his birds, had a passion for chemistry and biology, and never knew a minute of boredom.
 
A year and a half ago he had become so seriously ill that he couldn’t attend at school anymore. Nine months ago, after a long odyssey, he was diagnosed with ME/CFS.

The last months of his life he was so ill that he couldn’t bear any sound, or the presence of other people. He couldn’t handle intellectual information. Daily life was nearly impossible for us and his siblings, because all of us knew that every sound gave him unimaginable pain.
 
In the last two days of his life, many clinicians cared for David: First aid helpers, ambulance crew, emergency doctors, intensive care unit crew, neurosurgery OP-team, and a further anesthesiologists and neurosurgery intensive care unit crew – not one single person of all these experienced and well-prepared people had heard about an illness named ME/CFS before.
 
Our dream is that in the future no ME/CFS-patient has to face the situation where the ambulance crew needs to spell the name of this illness into his walkie-talkie.

And that no seriously ill child have to wait nine months for a diagnosis, during which all treatment attempts worsen his symptoms, as took place with David.

And that parents, who have the unsolvable task to care for a seriously ill ME/CFS-patient are not threatened with the withdrawal of custody and don’t get letters from the government office for youth welfare.

They need help, support and empathy, and in very hard times the chance to get care for patients outside of their homes.

In the whole of Germany there is no means for meeting the special needs of patients with severe ME/CFS.
 
It is our dream that this fact will be changed.
 
If David’s pain and our loss will change something, then we will be glad and thankful.

Please do all you can to make this happen!
 
Thank you.

End quote

http://www.prohealth.com/library/showarticle.cfm?utm_source=twitter&utm_campaign=twitter_article&LIBID=18932


The NHS promise; broken. M.E. Myalgic Encephalomyelitis

Have you ever read the NHS promise? Take a day off from Blogging to give it a read; then email to your MP (You may use the text below if you wish.)

By refusing to use and recognise M.E. as a condition in its own right are the NHS unlawfully discriminating against patients in the provision of NHS services?  Sadly the answer is probably yes.  As an M.E. sufferer have since diagnosis by a Neurologist in 2007 I have had no further access to any Neurologist or Neurological team. I have been lumped in with other conditions which cause fatigue.

Myalgia means pain, not fatigue.  The NHS has refused to remove the WHO (World Health Organization) un-supported term “Chronic Fatigue Syndrome” from their website, nor has the NHS provide any Neurology led support for the unfortunate sufferers of this condition.

NHS and Medical council use of specialist advise from outside the field of Neurology is inappropriate and if tested in court may well succeed in any claim against the NHS.

The Nightingale Research Foundation was asked to present findings to the House of Lords and Commons which it did in 2007.  The report was accepted in full.  The Government’s failure to act on the report is a further failure which could be legally tested.

The Brain and the spinal cord carry the signals which make everything in the body work. including pain signals; normal muscle function; the adrenal system; hormones; senses; digestion and energy absorption etc.  This is why ME is a Neurological condition. It is not simply fatigue.

Encephalitis is recognised as a killer. There is no specific treatment for Measles Encephalitis which is a rapid progressive encephalitis caused by a chronic infection with the measles virus, similar damage can be caused by many other viral and bacterial infections and even some vaccines.   The damage from infection and fever can be halted by medication if treatment is started at a very early stages, hours rather than days if treated in hospital.   But about the thousands of others who suffer infections of home and survive chronic infection or whose fever was treated at home? There is no data.

When and if observed Measles Encephalitis is characterized by a history of primary measles infection several normal years (6–15 on average), and then gradual, progressive psychoneurological deterioration, consisting of personality change, seizures, myoclonus, ataxia, photosensitivity, ocular abnormalities, spasticity, general malaise, fatigue and coma. These symptoms match those with M.E. (Myalgic Encephalomyelitis or Encephalitis) even though the M.E. patients previous history of infection is unknown – there is NO REASON for the NHS to dismiss the possibility of Encephalitis causing deterioration of nerve and spinal tissue scars and recognise the Neurological condition.

Common viruses like Hepres Zoster, measles, mumps, polio, hepatitis B, pertussis, diphtheria, measles, mumps, rubella, pneumococcus, varicella, influenza can cause Encephalitis. There remains a black hole in the data regarding low level damage caused by subacute sclerosing and Encephalitis in a population which is aging and where medical professionals have taken the ‘eye off the ball’ for many types of viral and bacterial infection due to wider use of vaccination or reduced presentation of symptoms arising from use of paracetamol and other medication in the community.

Killer childhood diseases may now be survivable with vaccine or home treatment; but that doesn’t mean that scars are not left behind?

Please take action on M.E. (Myalgic Encephalomyelitis or Encephalitis) and ensure Neurological services are available.

Take action to stop the use CFS in relation to Encephalitis. Myalgic means Pain not Fatigue. People with M.E. are not active and suffer unrefreshing sleep; they are not simply ‘fatigued’ by activity or stress.

There have been too many fatalities and too much suffering due to mistreatment and diagnosis.  Please demand action from the NHS.

[insert name]

 

Ref:

M.E Fatalities:

http://www.hfme.org/topicmefatalities.htm

Find your MP: http://findyourmp.parliament.uk/

http://en.wikipedia.org/wiki/NHS_Constitution_for_England

http://www.nhs.uk/Conditions/Encephalitis/Pages/Introduction.aspx

Google search for M.E. (result is NHS CFS?!)

https://www.google.co.uk/search?q=ME&ie=utf-8&oe=utf-8&aq=t&rls=org.mozilla:en-GB:official&client=firefox-a&channel=sb&gfe_rd=cr&ei=BIt0U7yNLKu10QW-yIGIDQ#channel=sb&q=NHS+ME&rls=org.mozilla:en-GB:official

 

 


Inflamation of the Spinal Cord and Brain

Myalgic Encephalomyelitis or encephalitis inflammation of the brain and spinal cord. So why was Emily put in a Psychiatric ward?  Why did she and others have to die?

 

Myalgic Encephalomyelitis

Death

 

Myalgic means pain, not fatigue.  The NHS still will not remove the un-supported term “Chronic Fatigue Syndrome” from their website, nor has the NHS has a specific policy nor does it provide support for the unfortunate sufferers of this condition.

 

Typically caused by or re-triggered by many chronic infections (non-specific).  More people than ever are surviving previously chronic conditions; nobody is gathering data on the survivors?

 

It is widely recognized that Acute Disseminated Encephalomyelitis (ADE) like the damaging Measles Encephalitis is caused by a wide range of viral and bacterial infections and even some vaccines.  Its symptoms are measured in hours or days from onset of symptoms (when luckily recognised or observed) unusually severe or sudden onset of neurological symptoms are often masked by the symptoms of triggering infection.

 

How many times have you had a high fever and slept it off?  You probably took action to treat the fever; but what about when this is delayed a few hours or days?

 

In case of infections being luckily observed and immediately treated, Children tend to have more favourable outcomes than adults, cases without fevers tend to have poorer outcomes due to poor observation.  The latter effect due to either masking effects of fever, or that diagnosis and treatment is sought more rapidly when fever is present.

 

Recovery is one to six months if death has not resulted,  mortality rate in days following acute infection and encephalomyelitis considered to be about 5%, where patients were observed.

 

Recovery despite continued observable subacute sclerosing (inflammation of nerves and brain) in 50 to 70% of cases [not monitored further], ranging to 70 to 90% recovery with some minor residual disability [some monitoring later] average time to ‘recovery’ is one to six months; even though inflammation in Brain and spine may or may not remain. [No data collected]  This is as far as studies went when carried out by the National Institute of Neurological Disorders and Stroke (NINDS).

 

For example ‘Measles Encephalitis’ is recognised as a killer; has a mortality rate of 15%, there is no specific treatment for Measles Encephalitis which is a progressive encephalitis that is seen (or traditionally recorded in) children and young adults, caused by a chronic infection with the measles virus.  The condition can be managed by medication if treatment is started at a very early stage, hours rather than days.  Some studies have been carried out by the National Institute of Neurological Disorders and Stroke (NINDS).

 

Measles Encephalitis (which some data has been collected – up until vaccination became common) is characterized by a history of primary measles infection several asymptomatic (normal) years (6–15 on average), and then gradual, progressive psychoneurological deterioration, consisting of personality change, seizures, myoclonus, ataxia, photosensitivity, ocular abnormalities, spasticity, general malaise, fatigue and coma.

The Brain and the spinal cord carry the signals which make everything in the body work. including pain signals; normal muscle function; the adrenal system; hormones; senses; digestion and energy absorption etc etc.  This is why ME is a Neurological condition. It is not simply fatigue.  The weird effects on the signals around the body are the least well explained; only when you’ve thought it through can you recognise this, it taking some patients years to figure what changes are occurring.

There remains a black hole in the data regarding low level damage caused by subacute sclerosing and Encephalitis in a population which is aging and where medical professionals have taken the ‘eye of the ball’ for many types of viral and bacterial infections such as measles, mumps, polio, hepatitis B, pertussis, diphtheria, measles, mumps, rubella, pneumococcus, varicella, influenza due to vaccination or reduced presentation of symptoms arising from use of paracetamol and other medication in the community.  Killer childhood diseases may now be survivable with vaccine or home treatment; but that doesn’t mean that scars are not left behind?

Sufferers of Myalgic Encephalomyelitis in the UK are abused, neglected and ignored they also lumped in with another group of patients suffering from Chronic Fatigue – which is accepted as be triggered by anything from stress or Cancer?

In patients confirmed to have M.E. the effect on the heart as a muscle is often overlooked. Muscles in the body of ME patients work at only 90-80% efficiency, recover slowly and do not respond to activity as they should. This causes not only pain in the heart, and a lower blood pressure, but lower efficiency in circulation and breathing (the diaphragm is muscle too.)  The source of the problem is enflamed nerves and brain. Not easily visualised or understood. The inflammation and its effects are strange enough, but also trigger anxiety and inappropriate adrenaline response.  Over time the patient will become chronically fatigued due to the imbalance caused by the dysfunctional nerves and develop anxiety and depression.

If you haven’t had the weird, repeating symptoms typical of ME (psychoneurological deterioration, personality change, seizures, myoclonus, ataxia, photosensitivity, ocular abnormalities, Hyperacusis, Misophonia ) prior to onset of fatigue then you haven’t got ME. You were probably simply fatigued, chronically or otherwise this is a totally separate issue.  Chronic Fatigue Syndrome doesn’t go anywhere near capturing the symptoms of ME.   Syndrome simply means the Doctor doesn’t know how to sort the symptoms out, and is in itself a failure.

Worst source of anxiety is misunderstanding and 95% of this comes from GPs and ME/CFS society and groups, which are run by those with their own opinions about Chronic Fatigue and not are Neurologists.  M.E. is a Neurological condition, nerves don’t work properly and are mixed up, this does not mean the patient is mad?!  The tragedy of Emily Louise could have been avoided if medical professionals stop falling back on opinion and listen to the research done – which has been demanding that proper data is collected and that possibilities outside the present ‘data’ are correct.    That Subacute sclerosing and Encephalitis is both more widespread and survivable than thought, and in an aging population, who’ve had access to better treatment could account for the number of M.E. patients – who are still waiting, dying for recognition!

Please pass on.